I like making it easy to share things, in ways that scale. 

My primary work is at Sage Bionetworks as the chief commons officer. I also serve as a senior advisor to the National Coordination office and as a senior fellow in entrepreneurship at the Ewing Marion Kauffman Foundation.

With my Sage Bionetworks hat on, I am working on an “portable” approach to informed consent and testing it in a series of clinical research studies in which people take the data they can gather about their own health and donate it for computational analysis. With my NCO hat, I work on issues related to federal priorities in big data and health IT. With my Kauffman hat, I’m working on organizational structures for health collaboration. I also like to agitate for public access to science through projects like the Access2Research petition and the Panton Principles.

I’ve worked at Harvard’s Berkman Center for Internet & Society, the World Wide Web Consortium, the US House of Representatives, and most recently Creative Commons (hosted at MIT’s Project on Mathematics and Computation). I also started a bioinformatics company called Incellico, which is now part of Selventa.

I studied philosophy at Tulane University.

There’s lots of content linked from my writing and talk pages. If you want more real time than here, follow me on twitter.

DISCLOSURES AND AFFILIATIONS

I serve on the board of directors for ImpactStory and the Foundation for Earth Science (non profit) and advisory boards (for profit, which means I am compensated in some form) for Boundless Learning, Genomic Arts, Curious,  Genomera, Qualcomm Life, Patients Like Me, and GenoSpace. I am also an advisor on the commons to the University of California at San Francisco’s Clinical Translational Science Institute and will always be a member of the Lybba family.

I occasionally get honoraria and travel for speaking and writing engagements. I have consulted in the past for companies, non profit organizations, and universities in  areas related to open access, open data, biotechnology, semantic web, and pharmaceuticals.