I work at Sage Bionetworks, where we build tools and policies that help networks of people who have their health data share it with networks of people who like to analyze health data.
I’ve worked at Harvard’s Berkman Center for Internet & Society, the World Wide Web Consortium, the US House of Representatives, Creative Commons (hosted at MIT’s Project on Mathematics and Computation), and the Ewing Marion Kauffman Foundation. I co-founded a bioinformatics company called Incellico, which is now part of Selventa.
I was a co-founder of the Access To Research campaign, which resulted in federal policy requiring public access to scientific research across the entire US government.
I gave a TED talk about sharing health data.
I studied philosophy at Tulane University.
DISCLOSURES AND AFFILIATIONS
I serve on the board of directors for ImpactStory and the tranSMART Foundation (non profit) and advisory boards (for profit, which means I am compensated in some form) for Boundless Learning, Curious, Genomera, Qualcomm Life, Patients Like Me, and GenoSpace.
I occasionally get honoraria and travel for speaking and writing engagements. I have consulted in the past for companies, non profit organizations, and universities in areas related to open access, open data, biotechnology, semantic web, and pharmaceuticals.